Program
May 20
18:00-20:00 Symposium/Workshops Bridging Reception and Birds of a Feather Sessions
May 21
7:30-8:30 Breakfast
8:30-8:40 Opening Remarks
8:40-9:20 Cryptographic Approaches to Privacy (Chair: Dominique Schroeder)
10:20-10:50 Coffee Break
10:50-11:30 Miscellaneous (Chair: Haixu Tang)
13:30-14:30 GenoPri Keynote Address (Chair: Brad Malin)
15:40-17:10 Panel (Moderator: Xiaoqian Jiang)
17:10-17:20 Closing Remarks
May 20
18:00-20:00 Symposium/Workshops Bridging Reception and Birds of a Feather Sessions
May 21
7:30-8:30 Breakfast
8:30-8:40 Opening Remarks
8:40-9:20 Cryptographic Approaches to Privacy (Chair: Dominique Schroeder)
- Efficient Secure Outsourcing of Genome-wide Association Studies [PDF]
Wenjie Lu, Yoshiji Yamada and Jun Sakuma
- Privacy-Preserving Statistical Analysis by Exact Logistic Regression [PDF]
David Du Verle, Shohei Kawasaki, Yoshiji Yamada, Jun Sakuma and Koji Tsuda
- Eliciting patient preferences for data sharing: Are we ready?
10:20-10:50 Coffee Break
10:50-11:30 Miscellaneous (Chair: Haixu Tang)
- Passing go with DNA sequencing: Delivering messages in a covert transgenic channel [PDF]
Ji Yong Chun, Hyelim Lee and Ji Won Yoon - Privacy Threats and Practical Solutions for Genetic Risk Tests [PDF]
Ludovic Barman, Mohammed-Taha Elgraini, Jean Louis Raisaro, Erman Ayday and Jean-Pierre Hubaux
- Quantifying Genomic Privacy via Inference Attack with High-Order SNV Correlations [PDF]
Sahel S. Samani, Zhicong Huang, Erman Ayday, Mark Elliot, Jacques Fellay, Jean-Pierre Hubaux and Zoltan Kutalik - One Size Doesn't Fit All: Measuring Individual Privacy in Aggregate Genomic Data [PDF]
Sean Simmons and Bonnie Berger - Genomic Privacy Metrics: A Systematic Comparison [PDF]
Isabel Wagner
13:30-14:30 GenoPri Keynote Address (Chair: Brad Malin)
- Privacy & Knowing in DTC Genetic Testing
Kate Black, J.D. (Privacy Officer & Corporate Counsel, 23andme)
- Genomic Privacy and Direct-to-Consumer Genetics [PDF]
Andelka Phillips - Seeking a “Race to the Top” in Genomic Cloud Privacy [PDF]
Mark Phillips, Bartha M. Knoppers and Yann Joly
15:40-17:10 Panel (Moderator: Xiaoqian Jiang)
- Genomic privacy threat and risk measurement
17:10-17:20 Closing Remarks
Keynote: Privacy & Knowing in DTC Genetic Testing, Kate Black, J.D. (Privacy Officer & Corporate Counsel, 23andme)
Abstract
The use of DTC genetics in research and data analysis is a rapidly growing and complex field. Progress made in this arena allows genomic testing to potentially detect, specifically treat, and study various types of disease. Genetic discoveries can also answer research questions relating to issues such as population trends, migration patterns and the like. In addition, individuals benefit from their own genetic information through knowledge gained and by sharing the information contained in their genomic data with family, friends, and caregivers, if they so choose. But the potential rewards from genetic testing is not without privacy risks, including:
What you’ll take away:
Kate joined 23andMe in 2015 in the newly created role of privacy officer and corporate counsel. Her responsibilities include: developing, implementing, overseeing, and maintaining comprehensive privacy and data use policies, practices and procedures for the company. Prior to 23andMe, Kate spent two years with the U.S. Department of Health and Human Services' Office of the National Coordinator for Health IT (ONC) where she was responsible for developing and updating national privacy and security requirements. Before ONC, she was staff attorney for the Health Privacy Project at the Center for Democracy and Technology (CDT).
Kate holds a Juris Doctorate from The George Washington University and received a bachelor of science degree in health sciences from The Florida International University.
The use of DTC genetics in research and data analysis is a rapidly growing and complex field. Progress made in this arena allows genomic testing to potentially detect, specifically treat, and study various types of disease. Genetic discoveries can also answer research questions relating to issues such as population trends, migration patterns and the like. In addition, individuals benefit from their own genetic information through knowledge gained and by sharing the information contained in their genomic data with family, friends, and caregivers, if they so choose. But the potential rewards from genetic testing is not without privacy risks, including:
- The possibility of researchers deducing the identity of genetic donors through their DNA
- Third party access to information
- Implementing enough security safeguards to protect such unique and sensitive information
What you’ll take away:
- Emerging legal and ethical issues in DTC genetic testing, research, and analysis
- Challenges and risks in protecting the privacy of genetic information in the online world
Kate joined 23andMe in 2015 in the newly created role of privacy officer and corporate counsel. Her responsibilities include: developing, implementing, overseeing, and maintaining comprehensive privacy and data use policies, practices and procedures for the company. Prior to 23andMe, Kate spent two years with the U.S. Department of Health and Human Services' Office of the National Coordinator for Health IT (ONC) where she was responsible for developing and updating national privacy and security requirements. Before ONC, she was staff attorney for the Health Privacy Project at the Center for Democracy and Technology (CDT).
Kate holds a Juris Doctorate from The George Washington University and received a bachelor of science degree in health sciences from The Florida International University.
